Autoimmune Disease Support Group
A Central NJ Support Group Call Us at (908) 358-7167
 
     
 

Our  Mascots are Marlie and Wilson!  

August 15, 2020


I.  Ice Breaker:  If you could choose any “super power” what would it be and why?

Each person was given a minute or two to share what super power they would pick and why! These exercises are designed to help us get to know each other on a deeper level

II.  The Rules of Group were reviewed for all

III.  We welcome two new Group Members!!!

IV.   We had a short presentation today about a great non-profit that aligns with our mission! We welcomed Zachyra Rodriguez, a co-founder of Anthony’s Legacy of Love, along with one her Board Members, Dr. Rowena Moore! Zachyra let us know all about A.L.L. and the great work that they do providing outreach for those in need, generating scholarships in Anthony’s name, as well as educating the public about autoimmune diseases!

They have asked me to be a Team Captain to raise money in a “virtual 5 K” which will be done in October. I will keep info coming as I get it, but in the meantime, here is their link to help you get familiar with this great organization! I hope you will consider “walking” with me and helping raise money so that ALL can spread the LOVE!!! Zachyra Rodriguez, LMSW, CMS, President and Founder Here is a link: www.anthonyslegacyoflove.org

V.  Open Discussion

It was great to welcome new faces and see some familiar faces from the earlier days!!!  I always love it when I see someone we haven’t seen in a while!!!

One member is dealing with recent heart issues and has undergone cardia cath with stent placement and recent pace maker placement. They experienced some internal bleeding a sa complication.

One memer states that they feel the key to better health is to just educate yourself as best you can about your diagnosis and any treatment options.

One member shares that their original diagnosis of Chronic Fatigue Syndrome was changed to Hashimotos Thyroiditis. Group supported this person about being on the wrong treatment course for a very long time. Here is a linkfor more info on Hashimotos https://www.womenshealth.gov/a-z-topics/hashimotos-disease

One member shares how much worse they got after back surgery that was not successful.

One member recommends Dr. Vinod Abraham, regular GP. In additional to normal medications and medical interventions, will use a holisitic approach where appropriate. Here is a link

https://findadoctor.atlantichealth.org/provider/Vinod+Joseph+Abraham/639310

One member states that everything they read discusses reduction of inflammation as key to dealing with autoimmune disease.

One member has been dealing with mental health issues and shares that they got good improvement from neuro feedback. Here is a link to an article by Psyhology Today which can provide a bit more info  

https://www.psychologytoday.com/us/therapy-types/neurofeedback

 One member states that they were originally diagnosed with costochondritis and has now been diagnosed with intercostal Neuralgia which is extremely painful. Here is a link to learn a bit more about it   https://www.painscale.com/article/3-similar-types-of-chest-pain-costochondritis-tietze-syndrome-and-intercostal-neuralgia

One member is diagnosed with Ankylosing Spondylosis. Here is a link 

https://www.mayoclinic.org/diseases-conditions/ankylosing-spondylitis/symptoms-causes/syc-20354808

One member is also dealing with Mast Cell Disorder, here is a link to learn more: *

https://www.healthline.com/health/mast-cell-activation-syndrome

VI.  Our Next Meeting:  TBD Please check the home page for updates


 
 

(908) 358-7167